Day 56

Avery: is still growing and slowly improving.  The nurses measure head circumference on a daily basis as a way of tracking changes in her hydrocephaly, and today for the first time, it looks like her head circumference went down on its own without having her reservoir tapped yesterday.  I'm not exactly sure that this necessarily indicates anything unless we started to see it happen consistently.  There's a potential that if that kept up, it could be an indication that her brain would be starting to manage the cerebrospinal fluid on its own, which would have amazingly huge implications.  For now though, it's just a single measurement.  We are happy that she is doing so well.

Wren: is still trying to catch up to her sister and gained weight for the third day in a row.  She has been doing well enough that the doctors decided to pull her OJ tube (oral jejunum feeding tube) back to position as an OG tube (oral gastro) terminating in the stomach rather than the small intestine.  She also had her PIC line removed as the last course of her antibiotic from her latest possible infection scare finished yesterday.  It's great that she's needing less medicine and growing bigger, finally.  The bigger she gets, the more chance she has to grow new healthy alveoli in her lungs.