Day 90

The girls are now 90 days old! Crazy, I know.

Avery is really packing on the pounds and now weighs 5 lb. 15 oz. She has gotten down to a pressure of 3 on her vapotherm (the nasal cannula). She started at a pressure of 6 so she is doing really well. If she can get down to about a 2 and keep her oxygen needs in the 20-30% range she can transition to a more manageable form of oxygen and be one step closer to coming home. She has yet to attempt any feeding by mouth so that needs to be checked off, as well as a few other things, before they will even talk about discharge, but she's getting there! And the cheeks. Oh the cheeks! They are so very pinch-able. As you can see in these photos, however, she clearly doesn't approve of that sort of thing.        

Wren enjoys taking things incredibly slow. She's quite a bit behind Avery in the weight department at 5 lb. 3 oz. and her support needs haven't really changed much at all. She's still on a CPAP with her pressure set at 7 (she would need to get down to a 4 or so to graduate to the vapotherm) and her oxygen is usually in the 50-60% range. Maybe mid 40% on a really good day. She is very dependent on the pressure and can't breathe on her own for more than a few seconds without it. The word "tracheotomy" was mentioned in regards to her and that idea terrifies us!! If she needed to get that done it would still be very far down the road but we are hoping and praying that she will start to progress and it won't be necessary. On the up side she's starting to be awake for longer periods of time and the physical therapists have been pleased with her motor development so far. That's good to hear because the Docs think that's where her brain damage occurred so she may be already compensating for some of that! It's hard to know for sure this early in game but we have high hopes.


Wren's slightly smaller than Avery's but still very pinch-able cheeks. She seems to be practicing her kissy lips in the second pic.