Here is Wren just a few days ago, still on the CPAP with a good amount of pressure (7.0) and fairly high oxygen (~55%). By administering the steroid, the docs were able to get her progressing again and to move not only to a cannula for less intensive oxygen support, but also on about 5.0 Liters of flow at 28% oxygen.
Wren seems to be very happy without the big old CPAP mask in her face all the time. I think the mask made it hard to see, and it was also very noisy and had constant pressure on her face and head. The cannula is much more comfortable and also quieter.
We got to hold the girls together for the first time on their due date. It rocked. They snuggled right in to each other and got back to the business of kicking each other's legs, just as they did back in the good ole' days in the womb.
Avery was looking pretty cute with her cannula just a few days ago...
...but today she decided it was time to be done. This morning at 7:00, she pulled the cannula out on her own, and was sleeping peacefully. The docs saw her saturation levels sitting at 99% and decided that she was telling them it was time to try breathing without the tube. This was not on anybody's radar -- in fact, a couple of days ago it still looked like she would go home with some oxygen support -- so she's pretty much in charge here.
Avery tried a bottle yesterday, but was too sleepy to be interested in trying. Today, they gave it another go. She figured it out almost instantly and had none of the common problems (coughing, dribbling milk, eating too fast). She's a natural eater. The nurse practitioner who gave her the bottle was surprised with how well she did. Shannon got to feed her another bottle a few hours later. Another huge milestone!
Shannon had a glow on her face when she came home today. I asked her how it went, and she told me simply that she was able to do some "real mom and baby stuff" like giving Wren a bath, feeding Avery a bottle, and holding both of them. These things may be be simple, but they're monumental to us. It's been a great week and is making us feel like maybe there's a light at the end of the tunnel.




I love this post so much! So happy for you guys and the huge milestones your girls are hitting! What a great sight to see!!!
ReplyDeleteThe last few days have been such a light in my life. I am glad the girls have had some wonderful days and seeing you guys holding and feeding your babies brings tears to my eyes. I can't even express my gratitude for all the blessings and miracles that have happened with these lovely girls.
ReplyDeleteWhat a blessed week it had been! I could see the glow in Shannon's face in the pictures! I can't find adequate words to express the gratitude and happiness that this all is! God is so good and He is in every detail of their lives! 💕
ReplyDeleteI am constantly amazed at the wonderful progress of these special little girls. They are such blessings to our family. Way to go Avery and Wren!
ReplyDeleteWonderful wonderful updates!!!! So many miracles in such a short time. Keep your faith high! You guys are doing it!!!!
ReplyDeleteI feel so unbelievably happy about all of this!! So much to be thankful for!
ReplyDeletethis feels huge to me so I can only imagine how you guys feel. Lately I have been feeling like no matter what life brings, I want to focus on the positive. You and Shannon are an example of that to me.
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