Two weeks down. To me, it feels like a longer time should have passed.
Avery is taking her next treatment of neoprofin today, so she is off food again. They are watching her closely, since last time she got the drug her kidney started shutting off and stopped producing urine. She seems to be doing really well today, though. She always seems to react really positively to talking when we go in.
Wren still has an infection, and apparently it's now present in her blood as well. She has had a few treatments of antibiotic now as well as continued Nitrous Oxide gas to stimulate the lungs. Today she was looking and acting quite a bit better. Her heart rate dropped to the 170s, blood pressure got up to around 38 (the target being 45-50) and her oxygen needs went down to 50% from 70% yesterday.
Avery and Wren - A blog about our twin girls during their time in the NICU.
You don't know me but I found your blog through Melinda Quigley. I live close by and had triplets at 24 weeks 4 years ago. Our 2 daughters passed away and our son spent 5 months in the St. Luke's NICU. Please let me know if I can help in any way. For us, it was so helpful to talk to others who had experienced similar situations, just to compare and vent our emotions with someone who has been there. I would be happy to come down to the hospital to visit with you anytime you might need it. Unfortunately, we know your path so well. You are in our prayers. Please feel free to call me anytime...seriously, anytime! My name is Dusti and my number is 208-521-2502.
ReplyDeleteI read a few posts back and saw that you already met with the Stevensons. They came to visit us when we were there as well and are still a dear family to us. They helped us tremendously!
ReplyDeleteDusti, thanks a ton. It's so strange and yet not at all strange to me how people come from all over to offer us support in a time of need. I hope to someday return the favor for others down the road.
ReplyDeleteYou will definitely find a sense of healing and purpose to be able to use such a hard situation to help others. While I would have my girls back and take away all the pain our son suffered in an instant, I'm so grateful for the path our situation led us down. It has been such a blessing. Continued and constant thoughts and prayers for your family and your girls.
Delete