Wednesday, August 10, 2016

Day 9

Wren - her heart murmur hasn't let up yet.  She's receiving more doses of neoprofin today and tomorrow to see if it resolves itself.  Big news - she opened up her left eye today and peeked around.  I'll try and get a picture.

Avery - had a firm stomach today with bile, she just can't seem to get her digestive system moving well.  The doctors decided to give her a break from food for today and maybe tomorrow to let her rest, and by the end of the day her stomach started to soften.  She cracked open an eye today also, but in true twin sister fashion she insisted on being different, so she opened the right one.

The Hall
Walking into the NICU, there is a long hallway called the Hall of Hope.  It's got a bunch of pictures of kids who were in the NICU and are now older as a before/after picture.  This was a brilliant design choice for this hallway, since it's where parents are nervously walking in to check on their babies and wondering if they're going to be ok.  We had the privilege to meet the parents of twins born a few years ago; these parents took time out of their day on Sunday to come meet us and talk about their experience and let us ask them some questions.  They were in a situation where both babies had brain hemorrhages, and one made it through while the other didn't.  While I know this must have been a deeply painful experience for them, I felt that their family is full of love, hope and faith in God.  While I don't think those things make anything "easy" in themselves, but I do know that we can find strength in faith, regardless of our situation.

  Their daughter made a awesome little get-well card for the babies also which we hung up on the wall in the nursery with the pictures our kids made for Wren and Avery.

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