Thursday, September 1, 2016

Day 31 - One Monthiversary

Wren is still working at breathing in both lungs and is a bit uncomfortable.  The chest x-ray today showed that her air bubble blebs are still there and maybe a bit worse from yesterday, but at least not accelerating in expansion like they were before.  After feeling a bit discouraged from talking to the doctor, I was able to turn to Shannon, who is always hopeful.  Though things aren't as good for as her now as we hoped when the tube got pulled back, we still know that no matter what happens, we will know what the right thing to do for her will be just as we have before, and it won't come from us alone, and it won't come from our doctors alone.  It will come from the one who knows and understands more than all of us, and that answer will make itself known to us.

Avery decided to celebrate being a month old today by getting off the dumb old ventilator and breathing on a SiPAP machine!  (Same idea as a CPAP if you've ever seen one of those). She is now breathing from a little mask over her nose and only 25% oxygen.  That is friggin' rad.  We'll see how she does on it for a couple of days.

For a short moment while the nurses and RT extubated Avery, they were able to grab a quick picture of her without anything in the way of her beautiful face. She even cried a tiny peep of a cry while Shannon was there.  We got to hear her real voice for the first time today!


8 comments:

  1. This picture has made my day today

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  2. Your right, definitely a Hendricks that one

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    1. Yeah, and we haven't really seen her sister's face yet...but with them being identical...I think we can guess :)

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  3. Precious picture! Celebrate every small victory.

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  4. We love you all so much!!! Continued thoughts and prayers for your little family. Thanks for the update and take care.

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  5. Avery has changed! She has some chub on her itty bitty-ness!

    As for Wren, my prayers are still pretty intense!

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