Day 38

The girls are doing well today. The neurologist updated us on Avery's EEG and said that she had no signs of seizure like activity. She's been off of her seizure medication for a week now so this is great news! Her reservoir was tapped again today and Kevin actually got to be there to see it. The doc removed 15 mL and she seemed to handle that just fine. Hopefully she will only need to be tapped twice a week now.

Kev, looking all doctory and stuff.

Very BIG news for Wren today...



Here is a little peek at her x-rays over the last four days. I'll try to explain them as best I can. The picture on the left was taken Monday morning--the blebs are the black circle in her top right lobe. the rest of her right lung and most of her left are white which tells us she isn't getting a lot of air into them. The next was taken Tuesday morning--Doc Meyers thought the blebs looked a little smaller but she still wasn't able to oxygenate very well.  The third was taken Wednesday morning--the blebs are basically gone! However, both of her lungs seemed slightly collapsed. The fourth picture was taken this morning--not only are the blebs gone but she is actually getting good air and oxygen in both of her lungs now.

This is a miracle. Like, really, a real live miracle. Doctor Merchant told us on Sunday that Wren had less than a 1% chance of surviving long enough for her blebs to resolve. She estimated it would take months. MONTHS. And even if they did deflate she still likely wouldn't make it because she wouldn't be able to breath with just one lung and would likely need long term ventilator support that could last years. It's been four days. FOUR DAYS. There is no explanation other than God's hand helping her along.


They call this room the consultation room...



We have gotten to know this room very well. Basically, after a doctor sits you down and tells you there is nothing left they can do for your baby, they put you in this room and make you decide what you want to do next. It's really awful. We've been in this room 6 times in the last month and a half. Sunday night we ended up in there yet again and it was just, finally, way too much. I couldn't do it anymore, I couldn't decide what way Wren was going to die again. Kev and I both just sat there for a while, staring, not knowing what was supposed to come next. We said a prayer and decided that she needed another priesthood blessing before we did anything else.
Walking back into the babies' room to do the blessing was so hard. I was trying to be ready for whatever answer came but was so terrified that Wren's time here was nearly done. Then, mid blessing, Kevin paused for a while and I knew, I just knew, that she was going to get past all of her lung stuff. I thought, 'this seems crazy and impossible but somehow she is going to blow us all away!' And today, she totally did. She beat the odds. God gave us a miracle.

I'm completely humbled and so very grateful to my Father in Heaven. Really, I am amazed. Amazed at the immense love I know he has for me and for my sweet babies. Amazed at the amount of people, many of which I have never even met, that are worrying and praying and hoping for these girls. Amazed at the crazy amounts of loving service that have been done on our behalf. This experience is the hardest trial I have ever been given by far but it's also been the most beautiful. God is good.