Avery started taking Tylenol today. She'll take it every six hours and will be monitored to see if her PDA goes away. Shannon and I are meeting with the neurologist tomorrow to talk about the condition of her brain from the last scans and what they'll need to look at going forward. I think the big concern will be whether she ends up with hydrocephalus, because operating to get a shunt in to remove fluids would be a really big deal. She is still doing well for now, though, and pretty stable. In fact, she was on the lowest ever oxygen I'd ever seen her on today at 24%, getting ever closer to that eventual 21% target.
Wren is still on high oxygen needs following the infection in her lungs, and it's not clear yet whether she's going to get past that. Her needs fluctuate between 50 - 70%. One of the doctors talked a bit about pulling her breathing tube back and then trying to insert it into the healthiest lung in order to avoid causing problems in her lung with the damaged tissue, but they're not sure whether she will be able to stabilize with a ventilator just on one lung. She seemed pretty calm today when I was in talking and reading to her. I've been worried about her state with her lungs, so Tony and I gave her an additional blessing tonight. Once again, I felt reassurance that these girls are being watched over.
Avery started taking Tylenol today. She'll take it every six hours and will be monitored to see if her PDA goes away. Shannon and I are meeting with the neurologist tomorrow to talk about the condition of her brain from the last scans and what they'll need to look at going forward. I think the big concern will be whether she ends up with hydrocephalus, because operating to get a shunt in to remove fluids would be a really big deal. She is still doing well for now, though, and pretty stable. In fact, she was on the lowest ever oxygen I'd ever seen her on today at 24%, getting ever closer to that eventual 21% target.
Wren is still on high oxygen needs following the infection in her lungs, and it's not clear yet whether she's going to get past that. Her needs fluctuate between 50 - 70%. One of the doctors talked a bit about pulling her breathing tube back and then trying to insert it into the healthiest lung in order to avoid causing problems in her lung with the damaged tissue, but they're not sure whether she will be able to stabilize with a ventilator just on one lung. She seemed pretty calm today when I was in talking and reading to her. I've been worried about her state with her lungs, so Tony and I gave her an additional blessing tonight. Once again, I felt reassurance that these girls are being watched over.
Kevin and Shannon, we continue to keep you and your dear girls, Wren and Avery, in our thoughts and prayers. Sending much love, Jim and Nancy.
ReplyDelete