Day 22

Today we let our doctor know that we'd like to pursue treatment for Avery's hydrocephalus.  The neurologist will evaluate how things look and determine the best action plan for later this week.  Meanwhile, her heart rate keeps dropping to really low levels and then moving back.  When this happens, this nurses watch her closely and help her to recover, but it seems to be a symptom that she's not going to be stable any time soon.

Wren's lungs still look bad, but for another day, they didn't get worse.  Where just on Sunday we were afraid we might lose her by today, it has not yet happened and in fact there's still a chance she can get past the issues if she can just maintain her levels enough to grow bigger and begin growing some additional healthy lung cells.  However, there may be another setback for her -- while uncovering the tape wrapping her PIC line in, they discovered today a small amount of what looked like pus, indication of an infection.  This would be really strange since she's currently on antibiotics that should cover most kinds of bacteria, so there is potential that she may have a fungal infection now.  The last thing she needs is another problem, but this girl has shown us that she's strong enough as a 1-pounder to fight through some heavy stuff, so hopefully with the new anti-fungal treatment she is getting in case she does have a new infection, she will be able to fight it off.